More Chyle :(

Wow. Today was a crazy day. First thing this morning, Harlie had another cyanotic episode (turned blue). She had all the same symptoms as weeks ago. One doctor (a new one for us) said that maybe she was just “agitated”. I guess so. You would be too if you couldn’t breathe! I asked if the effusion (chyle) was back and they said it was very unlikely. (Don’t worry, I didn’t buy it.) They took another x-ray and the radiologist said he could not tell if it was edema, effusion or both. So, they did an ultrasound. And guess what... There was an effusion. They thought her chest tube was clogged, so the plan was to go on ahead and pull it out. The estimate for how much chyle was in there was about 20-25 ccs. So they were going to use meds to help dry her out. Normally, this wouldn’t be that big a deal. If one lung can’t function at full capacity, the other one compensates. But, Harlie’s right lung is already compromised with the chest mass. So, when her left one can’t work that well, it really shows.

Well, they had to change her bedding and with all the movement, the chest tube started to drain! Within minutes over 40 ccs drained! Immediately her sats went up, and we were able to turn the O2 down a bit. So, now we have to start all over again. She’s back on TPN for at least 5-6 days, then they will re-introduce the Portagen and see what happens. So, it is safe to assume that we will be here at least another 2 weeks. I am so thankful that we love our nurses! And that we are here instead of DC. Well, I have to run. I hope all is well with you.

As always, thank you for all your support and prayers!
Take care,
Christy