So, I spoke with Nancy in the ortho clinic regarding the cast/car seat issue. She looked up the type of cast that Harlie will be in and it looks like it will be a pantaloon cast which goes around the waist and down the leg. The legs may be held apart with a bar. She will be unable to bend at the waist or sit upright. Nancy said that there are no car seats for children in this type of cast and that they do have a loaner program for “ez on vests” which some children use while laying down in the backseat.
However…she said that because of the trach issue, Harlie may require ambulance transport. Apparently, they end up using ambulance transport for many of their kids who require full body type casting. Does your insurance have ambulance coverage just in case?
WHAT?!?!? Ambulance transport???
I'm going to need a few minutes.
Okay, I'm going to need more than a few minutes.
Just off the top of my head, the ambulance transport hugely impacts everything. EVERYTHING!
School, doctor's appointments, therapy (I'm thinking speech is all she'll be able to do and even now that's a maybe), walks around the neighborhood or mall or just to get out of the house. I suppose the cast does that on its own. If she's strapped in while laying down on the bench seat in the 3rd row - just getting her in and out of the car is going to be an issue. I certainly won't be able to do that by myself!
For six to eight weeks!!!
Now I know this isn't the worst thing in the world - trust me. But, oh boy is it really gonna suck.
Okay, I'm going to calm down now. I will deal with each thing in its own time. Thinking about it and worrying about it two months prior doesn't really do much for me. It sounds like I won't be able to do that much planning anyway. I'm going to have to wait and see how she looks and how she'll be transported and what she can do, etc. before we can figure things out. Although I might want to look into homeschooling (not me - by someone else) for that time period. It doesn't sound like she'll be able to take the bus to school. Or be able to participate while laying down the whole time.
Oh, my sweet little girl. There are just not enough hugs and kisses in the world....
PS - And some of you think I can't handle a puppy. A puppy is a cake walk compared to this. (I say with a smile). And just to open myself up to more criticism/support - after much research, I've decided the perfect pet for our home is a
I think our family could use some smiles when this whole thing is behind us.