Monday, March 26, 2012

Quick Update

On Tuesday, the 20th, I took Harlie back to DC so they could take a look at her incision, which was still bleeding a little.  They also made more adjustments to her pacemaker settings.  They are going to let her heart rate get as low as 50 at night.  So, they set different settings for the night from 8pm to 6am.  Pretty cool how they can do that, huh?

Anyway, the whole appointment was a little traumatic for Harlie.  When it came to looking at her incision, it took five people (two of which were men).

They removed the steri-strips and cleaned it all up and then put new steri-strips in place.  Then they put a dressing over it.  It's a good thing, too, because there was a place at the top of her incision that wasn't closing up.  And it started bleeding when they started messing with it.  Katie told me that in the past five years she has never had a patient come back seven days post-op with bleeding.  Harlie just has to be different all the time.  It's kind of annoying.

And for a girl with low tone, she sure can be strong when she wants to be!!!

Harlie and Katie
The pacemaker team wanted to see what her heart was doing for a longer period of time, so they put another Holter monitor on her for 24 hours.  And Katie said she should stay home from school one more day.  She is still sensitive in her chest, so I thought it was better to let her take it easy.  

Wednesday was crazy.  Because I had to get everything ready and pack for our first mini-vacation in four years!!!!  Woohoo!!!!

We went to Charleston, SC to stay with some friends and it was FABULOUS!!!!  And I can't wait to tell you all about it!  And show you pictures!!!  

But, I have tons to do - unpack and stuff.  Then I have to pick Harlie up early for speech therapy.  She hasn't had any of her private therapies in three weeks!  I'm glad to be getting back to our normal since before the surgery.  I had no idea this pacemaker surgery would be so time consuming.  I'm so excited to see how Harlie does in school today.  I really wish I had walked with her and Terri into school so I could see her classmates greet her.  It's been three weeks since she was in school!  I really hope she knows how much she's loved!  

Okay, more fun stuff to come soon!  


AnnLeith in L.A. said...

So glad Harlie is doing well. Her strong determination will see her through a lot! Good for Harlie.
Love to all.

Susan said...

She's a true fighter! I'm glad they got things cleaned up and reprogrammed. Good luck getting back to "life as usual". XOXO

Anonymous said...

Keep getting better Harlie. Pittsburgh is thinking about you and your family and wishing you all the best. Cant wait to see picture of that puppy that is coming.
Love Sue

Rene said...

Oh, NOW you tell me you have friends in Charleston, lol! I hope you had an amazing trip. Sadly, living there we never had much of a chance to enjoy it. I can't wait to go back on vacation someday soon and play tourist.