Another successful surgery over. Hopefully that one will be the last for a little while, at least.
Her surgeon said that the wound looked clean - they washed it one last time and moved some muscle around, loosened up her skin (so there wouldn't be so much tension) and closed her up with stitches. Unfortunately, she couldn't use dissolvable stitches this time, so her scar just got uglier. But, since it's on her back she won't have to see it, so that's good.
She's now wearing her brace and it is so much better than the cast. Much more low-profile, which is a very welcome change!
I hope she finds it comfortable because she's going to be wearing it a while. Like a bare minimum of THREE months! For 23 hours per day! Ugh.
Here's how it opens up...
I tried to get a picture of the dressing, but she was not being cooperative. But you still might be able to see how long it looks.
This is what she looked like when she came out of the OR...
Totally hiding from the world. Can't say I blame her, either. This stay's going to be a hard one to get over. Too much in too short of a time span. If the girl wanted anything I'd get it for her. Maybe it's a good thing she doesn't ever ask for anything.
It kinda cracks me up how they cut a gown for her g-tube. I don't know why. Every single onesie she's had in her life had a hole in it. Guess we'll have to go back to holes in her shirts for a while. I'll just get some plain, inexpensive tank tops to go under the brace.
Taking her back down to the OR this morning was not easy. She is tired of all this and her pleading eyes told me so. I wish so much that I could save her - rescue her from one of these situations one day. Instead I just stand there and watch them take her. I signed I love you and she looked away and didn't sign it back. Oh, how that hurt! But, afterwards, in recovery, I signed it again, and she signed it back. She lives a complicated life with complicated feelings. It's no wonder she doesn't act like a normal 4-year old little girl.
She is now on pain meds. On a schedule today, and then as needed starting tomorrow. And I asked for something to help her anxiety. So they put her on Ativan. I don't know why I didn't think of it sooner. After her spinal fusion surgery they automatically put her on Valium.
Oh - and her surgeon wants to do a dressing change on Wednesday - then we can take her home. I'm glad to finally be able to think about it - but disappointed we have to wait till Wednesday. I really wanted to be home for Murphy's birthday. But my social worker is going to work to get everything done ahead of time, so that when the surgeon does the dressing change, we'll be ready to go.
Then we see her surgeon again in two weeks. And I'm sure a bunch after that.
Well, that's it for now. Thanks for all your love and support!
Monument Avenue 10K!
2 weeks ago