Brief Update

We have been so busy since coming home last week.  I'm hoping that things will settle down and we'll be able to get into a routine soon.

Murphy's party was Saturday and it went really well, I think.  The boys seemed to have a good time.  And since we had it at our house, our spending was at a minimum, which was a plus.  It is very clear to me that kids do not need to have expensive parties to have fun.  Photos to come later.

Today I had Harlie's transition into Kindergarten IEP (Individualized Educational Plan) meeting.  That took  two hours.  So much to talk about and get on paper.  I now have a much better picture of what her day will look like when she starts in the fall.  Oi.  I can't believe she will start Kindergarten in just a few months.  I'm excited but so, so scared!!!  There are so many things I want to tell you about - but I'll have to write about it later.

We also had physical therapy today.  Over the weekend Harlie was walking (while holding on to furniture around her) and she lost her balance and it clearly hurt her.  She immediately started crying and had to sit down.  I asked her if she was scared or hurt and she signed "hurt."  After that her walking was worse than before.

Anyway, she did well.  I think she is doing great - all things considered.  She definitely did more at PT than she does at home.

Well, it is late and I'm still struggling to catch up on sleep after going 9+ nights with very little sleep.  Although I think my tiredness is more from emotional exhaustion than lack of sleep.  It is very draining to send your child into the OR three times in seven days.  At least that's my take on it, anyway.

I will have lots of updates coming soon!

Thanks!
~Christy