Friday, September 7, 2007

Quick Update

Sorry I haven't been so good at updating the website recently. Just been trying to get back in the swing of things. We had PT on Wednesday and will have it again this morning. We had OT yesterday. That went okay, all things considered. No swallowing yet, but only trying to get her used to food in her mouth and making it fun for her for now. No wild and crazy goals yet. She has no notion of hunger, food, etc., so there's no incentive for her. We just have to have a LOT of patience with the oral trials.

I'm still thinking over what the GI doc said. He is recommending a nissen fundoplication (where they take part of the stomach and wrap it around the esophagus to make it "impossible" for her to throw up). Sometimes they come unwrapped, soon after surgery, or years later. He's also recommending a pyloroplasty, which is when they widen the opening from the stomach to the intestines so the food empties faster.

I'm still mulling all this info over. I have a few issues. One is we don't have proof that she's aspirating. And that would be the main reason for doing these procedures. Fear of aspiration due to reflux, need to keep her lungs healthy, etc. Plus, she is so close to being upright most of the day. And that will really help her keep her food down I think. Since babies typically outgrow reflux, if we could wait, we could avoid these surgeries.

But, unfortunately, it's not a simple decision. There are pros and cons, of course. The more food she keeps down, the faster she can gain weight and grow. Plus, the more comfortable she could be. But, they are not surgeries to be taken lightly, and they certainly have their drawbacks for me. It just makes me nervous that if she eats something bad later in life that her body wouldn't be able to get rid of it quickly. Blah, blah, blah.

So, a funny Murphy story: Tom went to go wake him up this morning. Murphy was wearing his Superman pjs. Tom started tapping his bum, saying, "Superman, Superman..." And without stirring, Murphy said, "Daddy, Superman's sleeping". I love his sense of humor.

Well, that's it for now. I hope you are all well!

Take care,
Christy

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