What a great week it has been! Yesterday she was off O2 for a good while. And today, she was off the O2 for ALL her waking hours! (We just turn it on when she's sleeping.) We are so thrilled!
It was so great to go to her helmet appointment today without the O2 on our shoulder. (Of course we keep it in the car.) But one less bag, tube, etc. makes a huge difference. Especially this one!
Anyway, her helmet wearing is going well. I think this is the first time that we were able to wait 2 weeks between appointments. Usually we have to go every week.
And she is back on regular ol' formula now (high calorie of course) and today, she managed to keep it ALL down!!! WooHoo!!!
So, just wanted to share all the good news from here. It is nice to have nothing to report but good stuff!
Take care,
Christy
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