Happy New Year

Wow. I can't tell you how glad Tom and I are to be leaving 2006 behind. It has been 8 long months since we learned our baby would have problems. We are truly ready for good news, good health and good developments. The new year starts out busy for us. This week we have: a barium swallow study, upper GI, occupational therapy, and an appointment with the pediatrican. The past few days have been pretty good I think. She is still spitting up, but I think it is improving. Her secretions seem to be going back down to normal - so that has helped her spit up less. Even though it is perfectly normal for a baby to spit up - it is a bit different for her. She can't wear a bib, so it is a total mess and her trach ties have to be changed when they get wet. And of course, the last thing she needs is for it to go down into her lungs through the trach. So, anything we can do to minimize it - the better. We hope to have another day nurse starting this week. She came over to meet us, but she is getting over a cold, so she has to wait till she's well before starting. Tom's parents came down to visit for the weekend. And our night nurse came over early so Tom and I could go out with some friends for New Year's. The nurse can't watch Murphy, too, so we have to have 2 sitters to go out. Since it has been more than a week since we've had a day nurse, we really needed a night out. Even though Harlie is a happy baby, her care is intense and constant. Well, it is getting late. I hope you all had a good long weekend and a safe and happy new year's. Talk to you soon,Christy