Lazy Sunday

Ahh, it's Sunday and we have no where we have to be. What a great feeling - one that we haven't felt in a very long time.

Well, Harlie's first pediatrician's visit went well. She is definitely growing - check out her growth chart. We love her doctor. She has another family that she takes care of that has a daughter with some of the same problems that Harlie has and she had a trach, too. So, that's comforting. And a nurse there is also a home health nurse on the side and she takes care of a girl with a trach, too.

I wish she could be our nurse. Getting a complete stranger to come in and help take care of a special needs baby is pretty scary to me. So far things seem to be going smoothly. We've only had a few minor heart attacks. I suppose we'll get used to that, too! One thing we were supposed to do is contact the power company to let them know that she's on equipment 24/7. Tom's mom asked if we had done that yet and we said no. About 17 minutes later, the power went out. Don't you just love it? That pretty much sums up our last 6 months of life. Luckily, it came back on in a few minutes. Guess we'll be taking care of that first thing tomorrow morning.

Murphy seems to be adjusting well (all things considered) to having his little sister being home. It has got to be hard for him to understand that she gets fed through a feeding tube and she breathes through the trach. But it doesn't seem to bother him.

Well, unfortunately we had to put her back on oxygen this morning. Her numbers have been a little low the last few hours and this morning her alarm kept on going off. We tried a couple different things, but it didn't improve. So, I guess we'll see how it goes and go from there. Well, that's about it. Thanks for checking in and for thinking of us.

Hopefully, we'll get to see everyone soon.
-Christy