This morning we had our big nutrition appointment with the Feeding Clinic team at the Children's Hospital here in Richmond. Harlie's feeding therapist, Allison, had already given them a report on how Harlie is doing eating by mouth. She is really doing great! And I can see that she is SO ready for the intensive feeding program! WooHoo!!!! Talking about it in the room with the team was amazing. I just can't believe we are here! I am so proud of her!
The scoop on the intensive feeding program is that there is a waiting list - about 20 kids long. And Harlie's name is officially ON THE LIST!!!
As of right now, it looks like the soonest she would start would be sometime in August. And, when the time comes, they will give me a three weeks notice.
This summer is going to be tricky. I can feel it.
As far as how the nutrition appointment went - Harlie is doing great. She weighs 29 pounds, 7 ounces and is 35.5 inches tall. She is in the 10-25th percentile for weight and 3rd percentile for height. She is the size of an average two and a half year old (she is three and a half).
She was expected to gain 1.2 ounces per week (since our September 2009 appointment), but instead gained 1.35 ounces per week. That is 107% of expected weight gain - which is totally fabulous - especially considering all that she's been through since September.
As far as growing in height - they expected her to grow 0.58 cm per month, but instead she grew 0.45 cm per month (78% of expected growth).
It is weird to hear some of these numbers (like 10-25th percentile) and that she gained MORE weight than expected. She is SO tiny! She appears to be skin and bones! And I had to tell them that she is still wearing size 18-24 months shorts! But, they say she is doing great, so I suppose it doesn't really matter.
On average, she's been eating about 10 ounces (of pureed food and Pediasure) by mouth per day. So the nutritionist recommended a different feeding schedule. One that gets her off her continuous night feeds again (which would be great). So, we'll start working on that tomorrow.
Exciting stuff, huh?
~Christy
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3 comments:
Very Exciting!!
Whooo Hooo! Guess we can add the hallways of the feedining clinic to the list of places we can bump into each other - well on Thursday's atleast!! It's got to be the best feeling for you! Give Harlie a big high five from us...she and Alex can have a blender party! :)
Wow! again. That's very exciting. I guess I was right about eating table foods. I can't believe she's going to do the intensive feeding program this summer! Awesome! I always thought she would get there. I remember her pretending to eat the corn on the cob.
I can't wait to hear if the switch off continuous has a positive result for her vomiting and eating. Please let us know.
Go Harlie GO!
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