Here's how she looks today. I don't think she appreciated me taking her picture. So this is all I got.
Any volunteers to help me with her hair???? I'm thinking it might be time to go short.
I think she looks good. Her swelling is already starting to go down and she can now open her left eye again.
She is definitely more awake and alert. She keeps on holding her arms up for me to pick her up. I held her for a little while and then Tom did. But she doesn't want to be held. She wants me to pick her up and take her out of here. So, when I just hold her she gets mad. Well, she pretty much is staying mad the whole time. Last night when we left I signed that I loved her. She wouldn't even look at me. Just stick a dagger in my heart, will ya?
She's watching Curious George now and is looking pretty comfortable, all things considered. They put her back on trach collar (not getting any breathing support other than oxygen), so that's a step in the right direction. She's on a continuous feed, which I might leave her on for a few days. I don't know how her x-rays looked this morning. I asked the rounding team but they said they had only seen today's x-rays and had not looked at the previous ones, so they don't know if there's an improvement or not. Based on that, I don't know what made them decide that she should go back on trach collar, but whatever.
So, I'm thinking things are looking up and progressing nicely. So, I went ahead and asked about going home. Her nurse said definitely not today.
Oh - so the doc just came in and said that they compared the x-rays and they looked a lot better today. So, I asked him what our goals were to get her home. He said that he wants to make sure she doesn't need any breathing support for at least 24 hours and the surgeons need to be okay with discharging her. Her neurosurgeon came by earlier this morning and released her. So, that just leaves Dr. Magee. I'm sure he'll release her, too. Her incisions look good, so I don't think that will be a problem.
So, with any luck, we can leave sometime tomorrow.
Thanks!
~Christy
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10 comments:
I'm soo glad to hear she is doing so well. She really looks good. I'm excited to see everyone. Miss you guys! Hurry home! Love, Brandy
great update! crossing everything I have that you all get to come home today!!! miss you tons!
Hooray! Can't wait for you guys to get back - she's doing fantastic! Hang in there and know she loves you, even when she's mad she can't go home. I can only imagine how tough that is following the emotional roller coaster that goes along with the surgeries. Little booger - it's her feisty attitude that always brings her through - just a little less of it right now would be good, right?! :)
I saw a white van in your driveway and got hopeful! So soon... Sounds like she's almost there. What a joyous homecoming it will be for everyone!
Harlie looks great--and I think short haircuts are the cutest on little girls. You can't go wrong to avoid cutting through mattes and tangles! Blessings.
Honey Harlie is ready to G-O!
This is an awesome update, you guys will be back home in no time!!!
Oh, I am a hair guru, just sayin'.
WONDERFUL!! Can't wait to hear she is coming home.
I'm glad she's so spunky. I hope you can get her home tomorrow.
I shaved Ainsley's hair both other times and let it all grow in together. It was cute and didn't take too long to start looking like a hairdo but she was a baby. So I'm not sure if I'm going to do that this next time. I think I'll wait to see what I can do with it. I'm glad it will be winter and hat weather. I don't know if Harlie will wear a hat? Headband? Headscarfs? There's no easy answer is there?
we are NOT cutting her hair....Dad
Bless her heart. I hope you can bail from the hospital tomorrow.
Sounds promising! We're praying for a speedy recovery and home soon for you both. Thanks for keeping us updated.
Sue
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