Tomorrow is Therapy Thursday. But, no longer hyped. Thank God.
She'll still have her speech therapy with Delisa who works with her communication device. But, that will be it for therapy. Because after that we are heading to MCV to see her cardiologist. Here are the issues I want to talk over with him:
Her sats are GREAT! The other day I saw 94 on her pulse ox machine and that is the highest number I've ever seen! Her new norm seems to be in the high 80s/low 90s. I'm wondering if this means that we can talk about closing her fenestration. I'll explain that after I talk to him so that it makes more sense.
Her heart rate is really dipping at night. She sleeps with a pulse ox probe on her toe, which is hooked up to a monitor (reads her oxygen saturations and heart rate). For years the low alarm setting for her heart rate was 50. Then after time, we had to reduce it to 45. Then 40. And now 35. She's had a Holter monitor reading done several times, and they have always said she looks good, so I haven't worried about it.
But, 35 seems pretty low to me. So, I'm going to ask him about that.
Her sternum has always looked great. Especially considering it's been opened four times in three years. But recently I noticed that it is starting to bulge outwards. I knew this could happen, I just didn't know it could happen 1.5 years after her last surgery. So, I just want to ask him about that. I really hope it doesn't get much worse. Oh, just saying that makes me nervous. I've had that hope before...
Plus, it's been a year since her last check-up. So, it's time to see him anyway. I'll let you know how it goes.
Monument Avenue 10K!
2 weeks ago