Guess what? She lost ANOTHER tooth!!! Her nurse was getting her all cleaned up - trach and mouth - and used a sponge thing attached to a suction. She brushed her teeth with the spongy thing and when she pulled it out I saw something white on it. A tooth. Another bottom tooth that must have been knocked loose yesterday. Grrrrr..... Her nurse looked at me so sympathetically and said she was sorry. But it was not her fault. And, quite frankly, I'm glad she got it out instead of it staying in there loose and Harlie swallowing it or aspirating it. Wouldn't that be something? Talk about adding insult to injury!!!
So, that's three teeth this stay so far, and one tooth from last year. Four of her baby teeth lost due to trauma. Nice. You can bet your butt I'll be looking into a mouth guard for her.
That just proves that no matter what - when you have a medically complex kid - you never know what's going to happen. And that's why every stay is stressful and scary. Not that loosing teeth is life-threatening or anything, but I never, in a million years, would have thought that would have happened during this surgery.
Anyway, her two IVs stopped working today. So, they had to get another IV in before they could take out the central line in her neck. She hates all the stuff wrapped around her hands and arms. And that makes it so difficult for her to sign. So, I asked them to try to get it in her feet. They didn't want to do that just in case they want her to stand at some point in the next few days. So, they got one in her shin/calf area, on the inside of her left lower leg.
They won't pull her arterial line (in her right wrist) until her blood work comes back normal. Which I hope happens soon because she HATES it and wants it off as soon as possible.
That's all I got written yesterday - so now I'll try to update you on what's happened since then. And it's a lot.
Thanks,
Christy
2 comments:
so glad to hear from you. sorry about the tooth. :( I know that's hard to watch them falling out. The tooth fairy is going to have to leave one heck of a present under her pillow next week! hope today is a good day. xxoo
I'm sorry for more tooth woes. ugh! Hugs from Richmond. Feel our love and prayers! I second Heather's wish for a good day today. I hope there will be moments of goodness knit within the day--that you don't always notice, but leave small amounts of joy in their wake. xo
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