Sunday, August 30, 2009

Tom and some other stuff

Tom is doing well. He is a lot happier now that the dressing is gone. We were able to remove that this morning. Tom's mom and husband came down late Friday night. So, they were a big help. They left this morning.

I made a huge mistake by not getting some help for Friday night. I just didn't think it through. He was out of commission the entire day. And when I tried to feed Harlie her dinner (orally) I had to puree several different things because the first thing I made she wouldn't/couldn't eat. If there's any texture to it at all, she gags and wipes it off her tongue. And since I was in a hurry I probably rushed it and didn't mix it long enough. I don't have this whole pureeing thing down pat yet and I had a huge mess on my hands. And all the kids needed me at the same time, including Tom. After I finally got everyone bathed and in bed (not Tom) I came down stairs and realized that I never ate dinner myself. So I made myself a bowl of vanilla ice cream with some magic shell. Probably not the best pre-run dinner, but I didn't care. It was worth it.

I don't know if he'll be able to go to work tomorrow or not. That will probably be a last minute decision. Here are some pics...

Waiting for surgery...


Just out of surgery...


Just before dressing removal on Sunday...


No more dressing...


We got Murphy's teacher assignment this weekend. I've heard a lot of good things about her, so I'm really happy with who he got. And we have Kindergarten Open House on Thursday. I just can't believe that he will be in school a week from Tuesday! He seems too little! But I guess all parents feel that way. I just know I'm going to be a head case that day. I get all choked up just thinking about it! I guess it's a good thing I'll be very busy that week. Yeah, right. Just that week.

Well, this week brings some good appointments. We see her GI doc to talk about the vomiting (my favorite subject). Today I was doing an oral feeding and she was doing great. She ate a total of 4.5 ounces. Woohoo! Then she promptly vomited 3 of it back up. Ugh. I really can't tell you how much I hate her reflux. "Reflux" - such a tame word for what she's got.

Then we see a nutritionist to see about her new feeding plan. We've been keeping a record of what she eats and how much (we weigh everything - including bibs - before and after a feeding to get an exact amount). I just fed her dinner (orally) and her grand total for the day is 13.56 ounces! Her most yet! And if she hadn't thrown up those 3 ounces it would have been 16!!! Wow! At this point we're winging her tube feedings. So, I will be very happy to get a plan from someone who knows what she's talking about. Now, let's just hope she knows what she's talking about...

As always, more later!
~Christy

1 comment:

Grandma said...

How's my son doing??? He has to look better and feel better than he did Friday night...hope all is well?