Just a quick post to say that we are going to Norfolk tomorrow to see Dr. Magee - Harlie's plastic surgeon. I'm assuming that he'll be able to look at her and give us some idea of what our options are. I'm guessing he'll want another CT scan at some point. But hopefully he'll be able to tell me enough to get back with her cardiologist in DC to make some sort of "plan" for when her heart surgery will be. Not knowing how all these surgeries are going to play out is hard to live with.
I've been in kind of a grumpy mood I guess. Tom said he could hear the anxiety in my voice. I suppose I snapped at him. Maybe a couple of times. I just don't want to hear bad news. Waiting for an appointment, hoping for a good one, and then hearing bad news... UGH! I just don't want anymore of that! Is that too much to ask???? Probably. Especially at this stage in the game. We still have a lot of appointments ahead of us.
Well, must get some sleep. Wish us luck!
~Christy
Subscribe to:
Post Comments (Atom)
Liver Update
Well, it's been like eight months since my last blog post. I started this post back in February. I think I'll just start with what I...
-
These past few weeks, my thoughts have been consumed with Murphy and his struggles in first grade. His teacher and I have spoken numerous t...
-
Hi. Here's another thing that's been on my mind - Harlie's heart. l think I'm just going to think out loud and hopefully it&... -
Hi. I've started this post several times. I get overwhelmed and put it down. I mean, if I get overwhelmed, how the heck are you going to...
3 comments:
Christy - it's okay to be grumpy. This next year looks to be a tough one for you, for Harlie - for everyone in your family. When it gets too overwhelming, remember our motto ... one day at a time.
Hugs,
Ann
I've been thinking about you all day. Hope things went OK!
Give yourself a break - you're totally entitled to your feelings!!
I know that feeling before an appointment. I hope things go well. Hugs my friend.
Post a Comment