Thursday, February 28, 2013

Quick update

Hi! We are still hanging out here at the hospital. Right now we do not have a clear plan. Which, as you can imagine, is a little frustrating.

Basically, they were planning on scoping her today. So they started to clean her out in preparation for that. Which means she couldn't have any food. She last had a feeding at noon on Wednesday. Luckily she doesn't complain about being hungry (so far anyway). And while that is handy for situations like this, in general, we would much rather her have more of an understanding of hunger and therefore, want to be fed.

Anyway, my thinking is that we are here, with an empty belly, and an almost cleaned out system. Why not scope her? Doesn't it make sense?

However, the GI's point of view is that she is no longer showing any signs of active bleeding, so it was most likely a polyp or cyst of some sort, and that it has most likely resolved itself. Or she was straining and tore her colon and it has resolved itself. So he wants her to finish being completely cleaned out and send her home. Oh, but he wants an X-ray at 6am tomorrow first.

I find it hard to believe that it was a tear. Granted, I have no experience with which to come to this conclusion, other than I have seen her struggle and strain before. And she did not strain that we are aware of. So, I am having a hard time accepting that.

My thinking is that we're here, and cleaned out, why not just do it and know for sure? What if it is a polyp or cyst and the only reason it stopped bleeding is because they've loaded her up on Miralax and it's been too thin to bother it? And is it normal for a six year old to have a polyp or a cyst to begin with? Because I'm thinking no. And it looks like we're going to be here anyway for that X-ray in the am. And while she's here, they are keeping her on clear liquids only. So, by tomorrow it will be almost 48 hours since she had any food. Why risk going home and having it happen again, and having to do this all over again, when we are already here and able? It's just a scope for crying out loud.

So, that's my argument. No verdict yet. I think it will ultimately come down to how hard I want to fight for it. And I don't know the answer. Especially when I want to believe that they're right and that it was a one-time-flukey thing.

We'll see...

So, that's where we are. I'll update again when more develops.

Thank you for thinking of us and for all your offers of help. Right now, I think we're fine.

Much love,

Christy xo



Susan said...

Christy, I hope you've been candid with the docs about all that you're thinking. I would agree with your logic. She's strained plenty of times and not had blood clots. What is the likihood of a 6 year old getting polyps, and in any case since she's cleaned out wouldn't it be good to know for sure? And due to her reconstruction wouldn't it be smart just to make sure there is nothing else going on? Because really isn't there also a chance that it's only stopped because she's cleaned out and doesn't have anything in her colon right now? I get that it's most likely nothing, but it seems that in Harlie's unique case it would be smart to make sure. You don't want to be back in there in a couple days.

Then the other thing I don't get is why an x-ray but not a scope? It's far more likely to be tissue than any sort of bone issue, or is it a chest x-ray?


Betsy said...

Your little one is in my prayers. I can't even imagine. Hopefully you are able to get some answers before you go home.

Christy said...

Fight for your girl!! As you do every single day!! Hugs to you!