The eve of the first day of school.

Tomorrow is the first day of school.  Sleep isn't coming easy tonight.  And neither are the words for this post!  I have typed 17 sentences, and backspaced over each one!  I HATE complaining and I'm afraid this post may come across that way.

But, here's what I want to say... tomorrow is the first day of school.  If you are kissing a child good-bye, taking some cutesy picture of them holding a frame, and sending them off to school, with a lunch that they will eat - by mouth - you should take a moment to consider how lucky you are.  If you are amazed at how big your child has gotten, and how much they've grown, you are lucky.  If, when you completed the health form in their back to school paperwork, you got to answer mostly "no", you are lucky.  I mean it, you are truly blessed.

And we are lucky, too.  We have two eager to learn boys, who I will get to walk to school tomorrow.  Murphy is starting 5th grade and Cooper is starting Kindergarten (do you hear the angels singing?).  And I am not sad.  Not one little bit.  They are growing, thriving, easy loving and learning kids.  What's to be sad about?  I knew when I had them they were going to grow up.  The alternatives to growing up aren't good, after all.

And while I know we are lucky to have Harlie (in every sense of the word), it sucks more than I can say to not be able to send her to school tomorrow.

Yes, one could argue, "it's better for her."  And that's probably true.  And, exercising regularly, eating more vegetables and drinking less alcohol is better for you, too.  But does that make it any easier to do?  No.

The bottom line is that she cannot attend school for health reasons.  And you know what?  That sucks.  Plain and simple.

I might have forgotten to mention that back in June when Harlie had her pacemaker adjusted, I asked her cardiologist about her attending school.  I knew in my heart what he was going to say.  But, I asked anyway.  He asked me how she's doing at home, learning-wise.  And she's doing well.  One could make a very strong argument that she has done better at home academically, than she did in school.  So, it's simply not worth the risk.

Medically, nothing has changed from last year.  While she can handle small breaks from the oxygen, her lungs are no better.  And one bad sickness could mean serious consequences for them, for her and for us.  With limited alveoli producing oxygen in there, you can't risk losing any more.

I have to remind myself that this decision isn't mine to make.  I cannot possibly tell you how difficult that is.  Every single day I want to figure out a way to make it happen.  I want her to have SO MUCH MORE.  Keeping her home feels like I've given up.

Some days it is so hard to be her mom.

I just looked back at the last few years of "first day of school" posts.  It made me sad.  So much hope I had.  So much effort we made to get her tiny little butt to school.  And for what?

And, is this forever?  Will she never go to school? What about school pictures?  The yearbook?  It seems wasteful to buy her a yearbook with a bunch of kids that she never even met.  And do I take her to school on the day of school pictures?  The thought of going into that school with Harlie, and it not being for school brings tears to my eyes just thinking about it.  And what about those little frames where you put each year's school picture in it so you can see how they've grown?  It would be mostly empty for her.  Which means I shouldn't get one for her.  Which means I shouldn't get one for the boys, either.  Which makes going for school pictures seem kinda stupid.

Ugh.

I don't even know what grade she's in.  Technically, she's starting 2nd grade.  But, that's kinda bull, because she didn't get any science or social studies last year.  And she still doesn't know how to read.

We went to the pool today and I saw girls that were in kindergarten with her the first time she started (she repeated KG).  They are now starting 3rd grade.  And they are so big and grown up.  And it's like Harlie is frozen in time.  She's still so tiny.  She still struggles to talk (although she is talking SO much more and we are now able to understand SO much more - which is fantastic and never for a moment do I take that for granted, I promise you!).

Anyway, it just feels so weird.  But, like I said, we are lucky to have her.  That is true, and I hold on to that every day.  She is so funny.  And smart.  Even though academically, you might not be able to see it, or measure it.  Just tonight when Murphy and I walked Rooney, he was telling me a story about Harlie saying something.  And he was laughing.  He enjoys being able to understand her just as much as I do.  And he thinks she's funny, too.  Just because it will put me in a better mood, here are a few things that she says that is really funny the way she says them...

1. She gives her baby doll to Murphy and/or Cooper and says, "you take care of the baby."  The other day I was feeding her and she signed "full" and "sick."  I said, "You're not sick!  Mommy's sick."  I was just joking around.  Time passed and I went upstairs and heard Harlie in Cooper's room telling him he had to take care of the baby.  He said, "I don't want to - ask Mommy to do it." Then Harlie said, "She can't.  She's sick."

2. If she asks for something (like to get on the computer) and we say, "in a minute" and more than a minute goes by, she says, "now?"

3. She keeps on telling us that she wants a "pink creature power suit" (from the show Wild Kratts).  The first time she said it I had NO idea what she was saying.  So, I called Cooper in and asked him to translate.  He looked at her and said, "What Harlie?"  She "said" it for the 400th time (1st for him) and Cooper looked at me and said, "She says she wants a creature power suit." and he turned around and ran out of the room.

4. I crack up every time she calls "Boys!" to Murphy and Cooper (like we do).

5. It's both wonderful and sad when she says, "I don't want oxygen."  I love hearing her talk, but hate that she has to have it when she doesn't want it.  The other day Brandy said her sats were 81 (I was in my office and Harlie was in the living room) so she went to go get the oxygen.  When Harlie saw the tubing, I overheard Harlie say, "I don't want oxygen." And then Brandy said, "But you need it." And then Harlie said, "But, I'm 81."  She looks at the pulse ox and looks at those numbers.  She never ceases to amaze me.

6. The other day she had her baby in her hands and she looked up at me and said, "I love her."

Nope.  Not going to take anything for granted when it comes to her.

Like when she made me get down the double jogger so she could take her baby.  How could I say no?

Or the time she tried to hula hoop with the big girls at a pool party.

I love the way she plays with Rooney.  Although, he might not always agree.

Minutes later I saw them having a heart to heart moment. While she was wearing swimming goggles.

And how could I not feel lucky when I get to see this...

Every time she rides her bike, I can't stop smiling.  She works so hard.  And she really is very happy.  I think this was her first summer doctor/hospital/surgery-free.  And she will be EIGHT years old this month.  Isn't that crazy???

Anyway, I will fight the sadness.  And I will continue to choose to find a happier perspective.  For as long as I possibly can.

Thank you for your love and support!
~Christy xo

Vacation in June and an Update

So long without a post!  Ugh!  Our life is full and busy, which is good I suppose.  But, to be honest, blogging about it hasn't been appealing to me for a long time.  I have been in a crummy place for a while now.  And time.  Time is such an issue.  My office has been taken over by Harlie's schooling and the kids watching Minecraft videos.  What in the hell is up with that?  I just do NOT understand that game.  And between my part-time job (granted, very part-time) and it being summer with the kids home, it's extremely difficult to get in front of the computer.

Anyway, I'll just start talking and see where it takes me...

Vacation, June 14-21

We went on vacation to Lake Anna with my family the week after school let out.  Tom had to work most of the week, so he wasn't there much.  Luckily, since it's only about an hour away, I had nursing for the week.

It was so great to spend time with siblings and my nieces and nephews.  They are such a fun group of kids and we just don't get to see each other as much as I would like.  So, that part was great.  The part that wasn't so great was how little Harlie was around us.

When we got there (it was a big house on the lake, with a really nice boat house) we found this float? tube? not sure exactly what it is intended for, but it was perfect for Harlie.  It had a mesh bottom, so it basically became a kiddie pool in the lake for her.

In that picture she wanted to sit in an additional float, just for fun, I guess.  Anyway, this was a perfect solution to keep her cool on hot days.  Although, to be honest, it's hard to relax around water with Harlie.  It's never far from my mind that everything could change in an instant.  Especially in lake water!  Oh, and someone told me after that week that kids with g-tubes shouldn't be in lake water because of the risk of parasites or something.  Awesome.  Luckily, there were no issues.  But, sheesh!  What's a girl with a trach and g-tube supposed to do for fun?!?!

Anyway, we got there on Saturday and she only spent some of Saturday and Sunday in the float.  After that it got too hot for her.  And some dragon flies came out, and she was done after that.  The girl does not like bugs of any kind.  The rest of the week she spent in the house with her nurse.  In the room where she was sleeping there was a TV with a DVD player.  She thought it was pretty cool to lay in bed and watch movies all day.  While that KILLS me, I try really hard to look at it from her perspective, and if she doesn't get to do that at home, I suppose that's what vacation is all about.

The other thing was that the house was not very close to the water.

Here's the view of the house from the dock.

And here's a view of the house and boat house from the water.

We took a wagon to help get Harlie and her stuff from the house to the dock.  But, with the oxygen concentrator, suction machine, etc., it was labor intensive to get her there and back.  And it was a hot week.  And Harlie just can't handle the heat.  Even when she goes into the water, she can't get her head wet.  So, it doesn't have the same cooling affect like it does for us when we can just jump in.  Anyway, it made me sad that she couldn't be with us, enjoying the same things we were enjoying.  And then I felt guilty for spending so much time away from her.

I know she still had fun.  She is always happy, that's for sure.  And I had a great time, too.  I got plenty of down time, and quality time with my family (minus my husband, unfortunately).  And I even got in all of my training runs!  Which I think is pretty impressive considering it was super hot, not good running terrain and I had my fair share of coconut mojitos.

Harlie got to fish, which was pretty much all she wanted to do.

Harlie's first fish!  And the only bass caught that week!

This girl cracks me up.

Dawn and Harlie

Cooper got in on the action, too!

My Mom and Dad got to ride jet skis...

My Mom (taking time off from chemo) and brother, Bruce.
It was awesome to see her have fun!

My Dad.

My Dad and Tom.

We went tubing.  Which is crazy.  Because I am just too old for that crap.

I am way too afraid of hurting myself.  I'm just not into that.  I thought that since I was on the tube with the FIVE year old, I was safe.  Apparently I was wrong.

I mean, look at this!  Poor Murphy!

Okay, maybe he thought that was fun.

Now, here's where it got real.  My new, and only pair of "nice" sunglasses that I've ever owned (that Tom got me for Mother's Day), flew off my head, never to be seen again!  I have included this picture for your enjoyment only.  Not mine.  Just look at the agony/fear on my face!!!

Yes, they told me not to wear them.  Did I listen?  No.  I repeat, I was on the tube with the FIVE year old, I thought it was going to be a nice, leisurely ride.  Clearly, I thought wrong.  

Apparently, while I may be tough on the inside - I'm a wimp when it comes to water sports.  And now I'm back to wearing cheap Target sunglasses.  Oh, the agony!!!

We sat on the dock and watched a storm come in.  We waited till the last second and then ran for the house.

One night for dinner we went via boat/jet ski to a restaurant on the water.  It was a night when Tom wasn't there and I didn't have a nurse.  The boys went on the fast boat, and Harlie and I went on the pontoon boat.  She loved it.

My niece, Jordan, just because I thought
this was such a good picture of her. 

Bruce and Nancy on the jet ski next to us.

When we docked at the restaurant, I realized we didn't have Harlie's chair.  So, she tried to walk.  But it was far.  So, everyone helped me by carrying something (her suction machine, my bag, her oxygen tank) so I could carry her.  It really wasn't that far.  But, it was to her.  And it makes me so sad to see how little endurance she has.  Any exertion at all is taxing on her and she just can't do it.  One second you feel great, enjoying a boat ride, and the next you get a slap in the face at the gravity of your daughter's heart and lung crappiness.  Sometimes it just sucks more than others.

Our last day was Friday.  Tom had to work and could only come out for half the day.  He brought Rooney with him.  So, he got to spend some time on the lake.

Not too far out in the water there was a table and volley ball net.  So, we played a game of beer pong.  Or two.  The under-aged kids just watched, of course.

Me and my beautiful nieces, Kelly, Maggie and Jordan.

Cooper with Poppy (my Dad).

Tom and I with the boys and Rooney.

Doesn't Murphy look so old in this picture?
Skinny.  But, old.

And Rooney liked it, too.

As did Harlie, of course.

I could so do lake living.

When Tom first got there around lunch time on Friday, he pulled into the driveway and him and Rooney came straight to the dock.  Harlie was inside with Dawn.  I was so excited to see if Rooney could swim that we put him immediately in the water to see what he could do.  He can swim, I just don't think he really enjoyed it that much.  So, I took a very short video on my cell phone and we didn't make him do it again.  Then Tom went up and got Harlie and brought her down, so she could see Rooney.

Hours later, we played and packed up and left.  Harlie and Rooney were in my car and the boys were in Tom's truck.  Harlie wanted to see the pictures on my phone (something she likes to do) so I gave it to her as we were leaving the house.  She came across the video of Rooney swimming and started to cry.  Like a legit, "I'm so sad and disappointed" kind of cry.  I turned to look at her and she said/signed, "Mama, I want to see."  She missed it.  She was in the house when Rooney was in the lake.  And she missed it.  And she knew it.  It's moments like these that kill me.  If her body were stronger - she would have been playing outside with the rest of us and she would have been right there.  With little to no effort.  Instead, just playing outside can be too much for her.  UGH!!!  How did this happen?!  Why?!???  Such futile questions.  It just sucks.  Plain and simple.

There's a bunch of other stuff I want to tell you about, but this is already pretty long, so I'll finish with a "quick" update on Harlie, medically speaking.

I can't remember if I already told you about Harlie's decreasing heart rate.  But, just in case, we realized in May that her heart rate was slower than it used to be.  And hanging out around 60 bpm during the day.  Seemed pretty low to me.  Her pacemaker was set to fire if her heart rate dipped to 50 while she slept, and 60 during the day.  If her heart rate was hanging around 60, that meant it was because her pacemaker was doing the work.

So, on June 25th, we went in to see her cardiologist.  He read her pacemaker and agreed, it was too low.  Basically, due to her heart disease, they expected that her heart would need the pacemaker full-time eventually.  Which, is where she is now.  He said that her heart was working on it's own only 12-14% of the time.  I think since she's now at a place where the pacemaker is taking over, he has more room to control it.  They've always wanted her heart to do what it could on it's own, then be assisted by the pacemaker.  It has been a struggle since her heart initiates a beat from all over her heart, at random paces.  So, the pacemaker couldn't predict what her heart was going to do.  Now, I think he can just set her pacemaker to do what is best, and it's pretty much taken over full function.

After making some adjustments, he said to make her walk up and down the hallway a few times so he could see what happens.  Brandy took her so I could chat with him without Harlie being able to hear us.

I want to know how long we have before things get bad.  But, he can't tell me that, of course.  I asked him what I should be doing and he said there's nothing I can do to change the way her lungs are.  Maybe her left lung will be strong enough to support her one day.  Who knows?  But, eventually, we will be at a place where our only hope/option will be a heart and lung transplant.  If only he could tell me when.  He said he would want us to think long and hard before going down that road.  It's a hard road, with a lot of pain for her, and not good outcomes.

I told him I can usually stay positive, but this latest info is kicking my ass.  I guess her doctors could tell that I had so many hopes and dreams for her.  I really thought she - we - were going to conquer all her challenges and one day, live a normal life.  I suppose from a medical professional perspective (who has seen way more than I ever have) they could see that I was living in la-la land.  The odds are just so against her.  There are too many challenges with too many of her body parts.  All it takes is one to go the wrong way...

I have never thought of her conditions as being "terminal."  Except when I was pregnant with her.  I knew the odds were stacked against her then, for sure.  But, it really seemed like after that, she could beat it.  We've never done anything crazy to keep her alive.  Just a whole bunch of surgeries.  None of them insane.  Sure, her leg bone is in her face.  But, even that's just another surgery day at Boston Children's Hospital.

But this?  When we get to the point where we really need to make a decision about this heart and lung transplant.... that seems insane.

And all my hopes up until now were fixable things.  Like, maybe another, different, jaw surgery will be the ticket to a better airway.  After this heart surgery, her heart will be better.  After spinal fusion surgery, her back will be better.  But, now, I have to hope that her left lung will just be able to handle the workload?  Even though right now, it can't.  At 7, and 46 pounds, it needs help.  But, maybe that will change.  Maybe there will be more medical advancements made in time to help her.

That's ridiculous.  How am I supposed to work with that?

So, that's where I am right now.  I need to find hope again.  And I need to figure out what I'm supposed to do when I hear someone say, "maybe she'll be a _____ when she grows up."  How do you live when you don't know how long you'll have your child?  Will she drive a car?  Get a job? Go to college?  I don't think about any of those things when it comes to the boys.  I just assume, that aside from some tragedy, that they will get to experience all of those things.

And for now, we have no focus.  We're not working towards getting the trach out.  We're not working on eating by mouth.  We're not working on ... anything, really.  For seven years, we've been working on things.  And now, we've stopped.  And I feel lost.  I don't know what to do.

When I was young, I worked at a small, family owned restaurant.  I was a waitress.  And if you ever did that, you might know what I'm talking about.  When the restaurant is really busy, you're on.  You have energy, you can remember stuff, you're working hard and feeling good about it.  But, after the rush, when the restaurant is empty and you only have a few tables, you suck.  You forget to check on them.  You forget their drinks.  You have enough down time that you can sit down for a second and then you realize how much your feet hurt.  Getting up again is that much harder.

That's kind of how I feel.  We've been so busy for so long.  And it slowed and I sat down.  And my feet hurt.  And I'm really freaking tired.  And now rescheduling that appointment with nutrition that we missed a few weeks ago seems an impossible task, that has been on my to-do list for weeks.  Going anywhere takes an exorbitant amount of energy.  And that layer of grief that is always just below the surface, is harder to rise above.

I know I have to figure this out.  Living with this sadness, I mean.  Maybe once school starts, it will be better.  We'll see.

Anyway, back to the pacemaker appointment... Harlie and Brandy returned from their walk and Harlie was definitely breathing heavy.  But, her sats were 84 and her heart rate was 120!  To put it in perspective, when we went to her cardiology appointment in February/March, we were in the waiting room and her sats were 90, on one liter of oxygen.  While in the waiting room at the end of June, her sats were 86, on two liters of oxygen.  After walking, her sats were 84 on two liters (but this was after physically exerting herself).  So, that's huge!

Now, a month later, on July 31st, she rode her bike around the block for the first time EVER.

What a wonderful change!  Granted, with training wheels and she went really slow.  We took the jogger stroller just in case she couldn't make it all the way around.  And we put the oxygen tank and suction machine in that and walked beside her the whole way.  I had to push on her back a little to give her a little help when the road was flat or inclined.  When she went down hill she would go two inches, and then apply the brakes.  It took us about 40 minutes to make it around.  But, she did it!  And she never once asked to get in the stroller, so that's awesome!

Happy Birthday Brandy!

I'm thinking that pacemaker adjustment was life changing.  She's had more energy in the past several weeks than she has had in years.  She actually sits and plays with toys instead of watching TV all the time.  I think she had no energy before - so it was easiest to just sit on the couch and watch TV.  Now she plays!  A few weeks ago, the bike got out.  I don't know how.  We got it for her years ago, and it had never seen the street.  But, she rode it around the house.

What?  Your kid doesn't ride her bike in the house while wearing a cat costume?  In July?

Okay, this has been long enough.  I have so much more I could share, but I am running 14 miles in the morning.  So, I have to get to bed.

Thanks for reading!  And thank you, as always, for your support.  Without my friends and family, I would be a mess!

Much love,
Christy xo

Our Trip to Pittsburgh

On Friday, November 30th, we headed to PA to see Grandma, Pap Pap, and the rest of Tom's family.  The kids spent over a week counting down the days.  We rarely get to take a trip as a family - for FUN!!!!  So, needless to say, we were all really excited!  I think it had been four years since Harlie was there.  Awful!

We managed to get out the door on schedule.  Although we did forget to pack Harlie's formula, which forced us to turnaround and go home.  We were on our last few cans and limping until our supplies came in.  They were due to be delivered that morning and I had asked them to deliver them before noon so I could have what we needed.  Of course, that didn't happen.  And there's another problem with her not being on store bought formula.  Ugh!

Anyway, the car was packed (except for Rooney).  We left him with Brandy again.  I am so glad he is a good pup for her and Brodie.  Thank you Brandy!

We got on the road and proceeded to have to listen to, "Are we there yet?" about a trillion times from Cooper.  Oh, Lord give me patience!

We also passed a spot with a memory for us.  I'm laughing just thinking about it.  It is a two-lane road with double yellow lines (Rt. 17).  Apparently, there is a "Bump" sign (which Tom pointed out for me, by the way).  Many, many years ago (way before Murphy came along) we were headed to visit his family.  I had a Ford Focus at the time.  I was driving.  I did not see the "Bump" sign and if I did I clearly ignored it.  Right after that sign there are some railroad tracks.  Whatever.

When we drove over them, we totally caught air and both of us left our seats.  I think if memory serves, Tom even bumped his head on the ceiling.  I can tell you that I remember the look on his face like it happened yesterday.  Oh, it still makes me laugh till I cry.

I wish I could have seen what we looked like flying through the air from the street.  Oh, funny stuff!  Oh, here we are!

As Tom drove past the sign, he pointed to it and said, "What did that sign say?  Oh, never mind, who cares?  We're making good time.  I'm going to speed it up a little."

LOL!  I am NEVER going to live that one down.

We had a great trip.  Although the first night we were there, Harlie went to go wash her hands and somehow lost her balance on the step stool.  She did a face plant into the vanity and knocked out a tooth.  Oh, there's something about her losing her teeth in traumatic ways that just bugs the ever loving crap outta me.  It was a baby tooth, thankfully.  But, since she's quickly running out of baby teeth, and is still just as unstable as ever, it's really only a matter of time before she knocks out a permanent one.  Her poor mouth!  Her dental future is a scary thing.

And you might remember that we were (and are still) dealing with her GI/constipation issues.  She's been wearing pull-ups for a few weeks now.  This is a time when I am thankful for her marching to her own beat - because she doesn't really care about wearing them.  Whereas most girls her age would definitely fight wearing pull-ups (after all, they're for babies!).  She seemed to be pretty good for a few days, so when we were there, I asked her if she wanted to wear underwear.  She said no and pointed to the pull-ups.  I didn't listen, of course, and put underwear on her.  That was a mistake.  She was right.  I was wrong.  I think it's time I give her a little credit and start listening to her more.

We celebrated Christmas with his family.  They are all so good to us!  Harlie loves her new scooter that Grandma and Pap Pap gave her.  Although as of now she's only ridden it in the house.  I must say that my stomach tightens when I think of her going down our street on it.  Luckily, I don't think that's really a goal of hers right now.

Tom took Harlie for a ride on the four wheeler and she loved it.

 Cooper did, too.

But Murphy did not.  Hence why there are no pictures of him on it.  Murphy did love one of her dogs, though.

Kristie (Tom's sister) and me.

Me and Tayne (Kristie's daughter).

The next day we headed down to Pittsburgh to take the kids to Lego Kids Fest.  That was great.  While waiting in line for them to open (they count down and shoot confetti into the air at opening time) there is a sign that suggests that you take a picture of your kids with your cell phone, just in case you get separated.  Pretty smart.

The kids loved it.  Here are a few pics...

Somehow, we managed to keep track of all three kids the whole time.  Although at times it was a little challenging.  Tom and the boys wore Steelers shirts.  Along with the rest of the entire crowd.  So, that didn't help much.  There was one area that was set up to build cars and they had race tracks for you to race them down.  All three kids loved that area.  Harlie could have stayed there all day!  It was a lot of fun.

After that, we had lunch with Tom's dad.  Then we went to our friend's house (we vacationed with them in Charleston, SC back in the spring) to watch the Steelers vs. Ravens game and stay the night.  We had a great time.

Then on Monday we came back home.  We heard "Are we there yet?" from Cooper a few hundred times, but considerably less than on our way there.  So, that was good.

We also decided on the way home that we really need to move forward with focusing on Harlie's communication device as her main means of communication.  While she wants to talk so desperately, and tries so, so hard... she simply cannot manipulate her mouth to be clearly understood.  I don't know when she'll be more understandable.  But, it won't be soon.  And trying to drive in the car, and figure out what Harlie is trying to say in the back seat is nearly  impossible and very UNSAFE.  She requires eye contact and time.  Two things you cannot give to a backseat passenger while driving.  It's so painful to know that she wants to say something, and you just can't figure out what.  If only she could talk - our life would be immensely better and easier.

When we got home, the kids wanted to ride their scooters.  So, Murphy looked for his helmet.  And that's when it hit Tom that Murphy rides his bike to school and we picked him up early on Friday - forgetting all about his bike in the bike rack at school!!!  OH NO!!!

So, they raced down to the school and found that the bike was gone.  :-(

While I know that we shouldn't have left it there (that was oh-so-stupid!) someone still took something that didn't belong to them.  We were just so excited to be leaving for a fun trip that we lost our heads for a minute!  Needless to say, Murphy was very upset.  And he rode his bike to/from school every day!  So, he really notices its absence.

But, one of Tom's friends and his wife, who are very kind and generous, reached out to him and said they wanted to get Murphy a new bike for Christmas.  I am constantly amazed by the goodness in people and how incredibly lucky we are to be surrounded by such good friends and support network.  And Murphy will be so freaking excited when he sees his new bike on Christmas morning!  I just can't say how thankful we are for these good people!!!

Okay, that's it for this post.  More soon!
Thanks,
~Christy xo