tag:blogger.com,1999:blog-4834405754301414360.post254526334436806719..comments2024-02-23T05:25:46.409-05:00Comments on Life Since Harlie: Harlie's off the O2!Christyhttp://www.blogger.com/profile/12158503749591171395noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4834405754301414360.post-65408240392223028402013-01-29T12:29:55.434-05:002013-01-29T12:29:55.434-05:00WooHoo for that! It's good to know it wasn'...WooHoo for that! It's good to know it wasn't pneumonia, since that explains why she wasn't acting herself. My fingers are crossed that you get a good sleep study.<br /><br />It's great that you are getting some help with your AAC. If you can get the software to make the changes/do the programming on your computer, that is easier/faster if you have a large amount of changes to make. I used to have a Vantage, made by PRC. I just spent 9 hours programming Ainsley's device yesterday because I'm going to start sending it to school (I changed the number of buttons on every page in the vocab). We too are at the point of "upping" our usage and "taking it to the next level". Harlie is going to rock at it once she gets in the habit of using it!Susanhttps://www.blogger.com/profile/16092188894818322564noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-69931495572390381092013-01-29T11:30:39.959-05:002013-01-29T11:30:39.959-05:00Christy,
It sounds like Harlie has such a wonderfu...Christy,<br />It sounds like Harlie has such a wonderful and caring team of educators. That is just awesome! I can only hope for that for our daughter, Lily's future :)<br />I have been following your blog and it has helped me learn, deal and not feel so alone. It is tough to find others that have a child with Goldenhar Syndrome that can relate.<br />Lily is 8 months old and i am still new at this but have read everything that I can find and we have now settled in a routine. <br />Lily is beautiful and amazes me every day :)<br />I recently sent you an email with my story and some pic's. did you receive it? If not, I can resend.<br />Hoping to keep in touch<br />Thanks for reading<br />PaulaAnonymoushttps://www.blogger.com/profile/00963974318258872831noreply@blogger.com