tag:blogger.com,1999:blog-4834405754301414360.post1121523393717612024..comments2024-02-23T05:25:46.409-05:00Comments on Life Since Harlie: She's ComplicatedChristyhttp://www.blogger.com/profile/12158503749591171395noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-4834405754301414360.post-74934807650718798152009-06-09T10:44:25.744-04:002009-06-09T10:44:25.744-04:00Hoping you were able to get some rest and that Har...Hoping you were able to get some rest and that Harlie's speedy recovery is underway. Please know there are so many people praying for you guys. Thank you so much for keeping your blog updated with everything you have going on - you're amazing.<br />Please let me know if there's anything I can do for you from here.<br />Miss you guys,<br />DonnaDonnahttps://www.blogger.com/profile/14372563554937434493noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-78003949947410094302009-06-09T06:47:17.696-04:002009-06-09T06:47:17.696-04:00Hi family. I wrote on you FB pages but wanted to ...Hi family. I wrote on you FB pages but wanted to just tell you taht I am praying for all of you every minute. I am very sorry things didnt go the way you had hoped. But, as we have learned, harlie always wants to be the difficult child!! She does things when she is ready. Love to all of you, and please know that even though we aren't there, we thing of you every single day! Love to all of you. Kristie, Dave, Nate and Tayne.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-52129594889488412752009-06-09T02:50:45.118-04:002009-06-09T02:50:45.118-04:00Uggh! I'm glad they made the safe call but it ...Uggh! I'm glad they made the safe call but it IS disappointing. I hope they can keep her free of pain and that the recovery is quickish. I'm thinking of you all and will be checking for updates. Hugs and kisses to Harlie!Susanhttps://www.blogger.com/profile/16092188894818322564noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-6399381690885098772009-06-09T02:49:58.739-04:002009-06-09T02:49:58.739-04:00What an emotionally draining time! I hope her pain...What an emotionally draining time! I hope her pain management is better tonight and she is resting comfortably. Sending lots of hugs and prayers your way! <br /><br />ReneRenehttps://www.blogger.com/profile/18245389462224261627noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-40150541985597482582009-06-09T00:45:18.050-04:002009-06-09T00:45:18.050-04:00Oh Christy... you must be exhausted!!! It is amaz...Oh Christy... you must be exhausted!!! It is amazing what the kids say when they are drugged up! :) In order for Ayden to keep quiet, we had to resort back to his baby einstien videos when he was drugged, otherwise he was just mad and restless. <br />Hugs to you.. hope things get better.Aydenhttps://www.blogger.com/profile/05722032739430125042noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-47521457463492579112009-06-09T00:20:57.381-04:002009-06-09T00:20:57.381-04:00We are praying so hard for our beautiful little fr...We are praying so hard for our beautiful little friend, and for Mommy and Daddy too.LJRhttps://www.blogger.com/profile/00136796552019973479noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-13693581490337274222009-06-08T23:21:09.983-04:002009-06-08T23:21:09.983-04:00Wow - no stopping the tears when I read about Harl...Wow - no stopping the tears when I read about Harlie signing 'hurt'. I had to go away and then come back to comment. God, I hate it for her. And for you and Tom. And I hate it even more that the Fontan isn't behind you. Major suckage! <br /><br />Hugs and prayers sent your way. Your updates have been fantastic - I don't know how you can be so clear with all that's going on. You are one amazing mama, with one incredibly amazing little girl!Kimhttps://www.blogger.com/profile/17018467410192896746noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-16688719805914226522009-06-08T23:10:03.873-04:002009-06-08T23:10:03.873-04:00I am keeping little Harlie in my prayers and so wi...I am keeping little Harlie in my prayers and so will Jerry. Please take care and let us know if there is anything you need. I hope she recovers fast and you guys can get home. Take care.<br />DaraDara and Jerryhttps://www.blogger.com/profile/14237256983854796081noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-74581185476658908612009-06-08T21:35:33.336-04:002009-06-08T21:35:33.336-04:00Just checking in on you all. We are thinking of yo...Just checking in on you all. We are thinking of you. Mike and MarcyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-53647356006226566842009-06-08T20:13:22.721-04:002009-06-08T20:13:22.721-04:00Christy ~
Hi! My name is Mary Elizabeth and I am ...Christy ~<br />Hi! My name is Mary Elizabeth and I am Gina Barnes' cousin. This is my first time writing here and my son also was born with CHDs, but to much less in severity. He had pulmonary stenosis and atrial septal defect, both were repaired on 3/27/09, when he was nearly 10 months old. He shared a room with a little girl who had just had her Fontan for Pulmonary Atresia. I am familiar with these procedures to a point, and I definitely understand what you were writing about her waking up on the drugs. Drew (my son) did the same thing and his surgeon was none too happy he was coming too so quickly because he was very agitated. Anyway, I just wanted to say hello, and that I am thinking about you all and will be following this! I am praying for Harlie's recovery and for peace of mind for all of you. I know it's not easy to continuously be dealing with life and death situations. Oh, I have a blog too: http://browniebitez.blogspot.com<br />~Mary E.Bill and Maryhttps://www.blogger.com/profile/02408839978874253280noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-32424233168711275662009-06-08T20:06:47.575-04:002009-06-08T20:06:47.575-04:00Christy, I'm so glad all went relatively well,...Christy, I'm so glad all went relatively well, but my heart aches (no pun intended) for you in terms of the waiting--yet again--for the Fontan. But time will tell when Harlie is ready, and then you (and she!) will get through it--yet again. As you know, I can also relate to all of the wonderful "complications" like bad veins and extremely high tolerance to the pain meds. That's really hard to watch, when your little one is clearly in pain, and awake!!--AFTER HEART SURGERY, no less!! But I hope and pray that they can concoct a mix that will work well and allow her to rest. Well, I have to sign off now, but I'll continue to pray for all of you guys tonight! love, SarahSarah (Lucy's mom)noreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-39168024950234113182009-06-08T19:23:30.469-04:002009-06-08T19:23:30.469-04:00Just checking for updates and wanted to let you kn...Just checking for updates and wanted to let you know that i'm thinking about you and praying for a quick recovery. Give Harlie a kiss for me! Love and miss you guys!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-60034147374323181832009-06-08T19:20:33.246-04:002009-06-08T19:20:33.246-04:00thanks for all he updates Christy. finding time t...thanks for all he updates Christy. finding time to do this for those of us waiting with baited breath is very kind. we will continue to send all our positive vibes, thoughts and prayers to you and Harlie. I hope you get some rest tonight.Heathernoreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-56119572225344646562009-06-08T19:04:55.230-04:002009-06-08T19:04:55.230-04:00Wow...poor girl, we also had the fentynel drip!
D...Wow...poor girl, we also had the fentynel drip!<br /><br />Dr Jonas is the best, please rest assured that he made a good call today....even tho' it means waiting.<br /><br />I know of someone who got the pace maker for their child....after lots of delays, and now wonder why they kept stalling!<br /><br />praying for you allBeverleynoreply@blogger.comtag:blogger.com,1999:blog-4834405754301414360.post-41375475646001589632009-06-08T18:24:54.729-04:002009-06-08T18:24:54.729-04:00I cry when I read this. She is so special and it ...I cry when I read this. She is so special and it hurts to know she (and you and Tom) are going through this. We will continue to keep all of you in our thoughts. Lord I wish we could do something to help!!Sandynoreply@blogger.com